KINSCAPES, TIMESCAPES & GENESCAPES: FAMILIES LIVING WITH GENETIC RISK Authors:

نویسندگان

  • Paul Atkinson
  • Katie Featherstone
  • Maggie Gregory
چکیده

This paper synthesises recent research examining how families live with genetic risk and the processes of genetic decision-making and disclosure among family members who have or are at risk of transmitting a familial genetic condition. Its aim is to generate substantive theory that can inform our understanding of the interactional processes at work in the distribution of mutual knowledge and awareness within families. The paper is structured round three inter-related concepts: kinscape refers to the constellation of relations and relatedness that are recognised practically; timescape to the multiple temporal frames of social relations and their transformation; genescape to the constellation of knowledge, belief and practice surrounding

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

Kinscapes, timescapes and genescapes: families living with genetic risk.

This article synthesises recent research examining how families live with genetic risk and the processes of genetic decision-making and disclosure among family members who have been or are at risk of transmitting a familial genetic condition. Its aim is to generate substantive theory that can inform our understanding of the interactional processes at work in the distribution of mutual knowledge...

متن کامل

Practice of Epidemiology A Family Longevity Selection Score: Ranking Sibships by Their Longevity, Size, and Availability for Study

Family studies of exceptional longevity can potentially identify genetic and other factors contributing to long life and healthy aging. Although such studies seek families that are exceptionally long lived, they also need living members who can provide DNA and phenotype information. On the basis of these considerations, the authors developed a metric to rank families for selection into a family...

متن کامل

Health and Loneliness Status of the Elderly Living in Nursing Homes Versus Those Living with Their Families

Objectives: As attention of the elderly is progressing rapidly in developing countries in recent years, special attention to their mental and physical needs are necessary. The aim of this study was to comparing general health and loneliness between two groups of the elderly, one who live with their families versus those who live in nursing homes in north part of Tehran, Iran. Methods & Mater...

متن کامل

Defining women at high risk of ovarian cancer.

We read with interest the article by Dr. Pejovic et al. (1) on cytogenetic instability in cultured ovarian epithelial cells from a small number of women at high risk of ovarian cancer. In studies of this sort, the definition of high risk is critical, but risk details for each of the five ‘‘high-risk’’ women in this study were not provided, including pedigree and genetic testing information. The...

متن کامل

Types of support accessed by families of young children with disabilities living in Alberta

This longitudinal study inventoried the types of services accessed by a sample of Alberta families of children with or at-risk for disabilities. We explored the role of severity of disability, parental stress, and family income on services accessed. With few exceptions, services were accessed more frequently as the children’s lives progressed but higher income families accessed more services th...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:

دوره   شماره 

صفحات  -

تاریخ انتشار 2012